The short answer - I'm doing what I should be doing for my vision problem...the long answer...So my eye doctor appointment got off to a shaky start - went to the address on the website which turned out NOT to be the clinic - sigh. Ended up OK though because I'd gotten downtown early.
What a production getting through registration! This was the ophthalmology dept of NW and very busy. I finally got into the correct waiting room, and then finally got taken to an examining room. The assistant did some basic stuff - checking how well I see using an eye chart, and my eye pressure etc.
Then I FINALLY got to see the doctor - Volpe. He asked me basic questions, and looked at the report from Dr. Margolis - a developmental optometrist. Even though the word developmental makes you think of kids, they also treat adults.I was glad that he took the report seriously. I had also sent him an e-mail earlier in the week to introduce myself. I wanted to be as prepped as I could for this appointment.
In addition to checking how well my eyes focus, he was looking for eye health - if I had any eye disease, and how well my eyes work together. He used prisms, lights, a magnifying glass and a few other things. It was difficult - especially the bright lights - but I was determined to do the whole thing.
He pronounced my eyes "individually" healthy. This didn't surprise me. My diagnosis is called Binocular Convergence Insufficiency. Big name. Binocular refers to two eyes, convergence to working together, and insufficiency to the fact that mine don't do the working together part as well as they're supposed to.
We learned on Sat. when Leena and Cara saw Dr. Margolis for their regular eye exam that both of them have a degree of convergence insufficiency - Leena more than Cara. Leena's will easily be treated with short term therapy. I wonder now if I had this problem to the degree that Cara has it - not enough to have previously caused me trouble.
Then 2 1/2 years ago I got severe vertigo. As a result of the vertigo, and because getting the right help took a long time, my convergence "wiring" – which I now know may not have been perfect to begin with – got really messed up. As I've told doctors many times, I didn't have this problem before, and no, I didn't get a bang on the head. The first time I saw Dr. Margolis was in some ways a really good experience because I finally was talking to someone to whom my problem made sense. The pieces were coming together.
Vision, as I've learned, is really complicated. Vision is a key part of your vestibular system, and your sensory system. Everything needs to work together. The way to fix the problem is through therapy - doing visual exercises that make my system work correctly. But it has to be gradual, because there's only so much info my brain can absorb at once.
My situation is also somewhat complicated because of my migraine condition which affects how stimulation has an effect on me. In addition to the fact that my system is sensitive, this is the reason that my therapy is taking a long time. The therapy itself is not high tech, but the point of it is to make my system work the way it's supposed to or rather function the way it should.
I used to only use voice recognition on the computer - now I do some keyboarding - which is a visual exercise. I can also do some writing now. Most people probably don't even think about all the ways in which they use their eyes - all the info that gets processed constantly.
I still listen to audio books, and I still don't drive. Those are two things on my bucket list, and every day, every week I move a bit closer. I've learned a tremendous amount from going through - and continuing to go through - this whole experience. That doesn't mean I'm happy that it happened to me, but I get that I have a problem that I have to keep working through. I'm grateful that I have found such good people to work with, and I try every day to focus on keeping on working through it so I can keep on making progress rather than focusing on my limitations.
Search
Popular Posts
-
Why is cognitive processing difficult when you have a vestibular or vision disorder, or a combo of the two? The short answer is that I (or...
-
I've been thinking about what I've learned and experienced over the last three plus years. I've also been thinking about the e...
-
NOTE: Please copy and paste into Google Translate to listen if needed. Apparently, I've been doing too many new things - both small...
-
NOTE: Please copy and paste into Google Translate to listen if needed. I struggle with how I feel about pacing. Pacing reminds me of...
-
To listen: copy and paste into Google Translate, click on "speaker" icon. I've started a list of what I'll need to br...
-
NOTE: please cut and paste into Google Translate if needed. Going to stores is something I've done very little since I got sick. I...
-
It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...
-
I've written about wanting people to be familiar with the term "vestibular", but prior to getting sick, I don't remember ...
-
NOTE: Please use Google Translate to copy and paste to listen if needed. I 've written about negative medical experiences, so I wan...
-
it's all connected - fingers, mouth, breathing, eyes playing with gentle fingers allows for easy breathing...flowing music so many b...
Archives
-
▼
2014
(74)
-
▼
November
(69)
- November 24th 2014 Noticing what's positive
- November 17th 2014 Persistence, finding what works
- November 13th 2014 - Writing, and Understanding
- November 5th 2014 - Welcome!
- Sept 8th 2014 - Meet Maisy
- June 5th 2014 - Care During Life and Illness
- Bloglovin!
- October 27th 2014 - On the Topic of School Shootings
- October 24th 2014 - Getting a Haircut
- October 21st 2014 - Thoughts after The Invisible B...
- October 19th 2014 - Medically Significant
- October 17th 2014 - My Participation in Kol Hadash
- October 12th 2014 - Practice and Rehab
- September 26th 2014 - My High Holidays Challenge
- September 24th 2014 - Thinking About Music
- September 19th 2014 - Explanation
- September 17th 2014 - An Unusual Week (for me)
- August 29th 2014 - Attitude Matters
- August 23rd 2014 - My Other Voice
- August 21st 2014 - Anthony's ALS Video
- August 17th 2014 - Managing a Break from Therapy
- Early August 2014 - Robin Williams
- August 5th 2014 - Reflecting
- June 26th 2014 - Challenging Myself: A College Adv...
- June 21st 2014 - Music is to be Heard, Shared
- June 12th 2014 - Step by Step to Sheet Music
- June 2nd 2014 - Vision
- May 25th 2014 - What I Did This Weekend to Challen...
- May 25th 2014 - Free Form, Steps to Reading Music
- May 3rd 2014 - Notes on the Page
- April 14th 2014 - The Music in Me
- March 30th 2014 - Warming Up
- March 22nd 2014 - Connections
- February 21st 2014 - The Sound of Music
- December 4th 2013 - Instruments are not just Wood ...
- November 23rd 2013 - Middle School Memories
- November 22nd 2013 - Beauty of Instruments
- November 20th 2013 - Music not Money
- November 5th 2013 - Music Matters
- October 11th 2013 - The Walking Man
- September 21st 2013 - Two Years, and Music
- September 12th 2013 - Breathing, Music and Hope
- August 25th 2013 - Musical Expression
- June 23rd, July 13th and 28th 2013 - Thoughts on M...
- June 28th 2013 - More on Flute
- June 21st 2013 - More Flute Stuff
- June 18th 2013 - Thoughts on my Journey Back to Music
- May 17th 2013 - The Point of Therapies
- May 16th 2013 - My Birthday
- May 12th 2013 - Mother's Day
- May 9th 2013 - End of Year, Flute and Audio Books
- May 4th 2013 - Looking Backward and Forward
- April 6th 2013 - Listening to Music and Words
- March 29th 2013 - Dr. Margolis
- March 24th 2013 - Playing Flute
- March 1st 2013 - Margolis
- April 27th 2013 - Goodbye to Noelie (French Corres...
- April 23rd and 25th - Walking, Margolis and Driver...
- April 19th 2013 - Noelie and Flute
- April 15th 2013 - Boston Bombing
- April 12th 2013 - The French are Coming
- January 30th 2013 - Words and Music
- January 24th 2013 - Music is the Sound That Feelin...
- January 15th 2013 - Little Things Can Make a Diffe...
- December 14th 2012 - More Thinking About Connectic...
- December 31st 2012 - Thinking About Last Year and ...
- December 30th 2012 - Thinking About Teaching Flute
- December 19th 2012 - English Teacher and Music
- December 18th 2012 - Aftermath of Connecticut Shoo...
-
▼
November
(69)