September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

Archive for March 2020

March 22, 2020 - much bigger than me - COVID-19



I appreciate people with various health problems feeling this is an opportunity to educate the public, or are perhaps even feeling frustrated and angry that COVID-19 is being taken SO seriously. 

So I wanted to share why I think COVID-19 is different from chronic conditions, and cancer, and why scientifically it's SO different - and more dangerous - than a cold or the flu - 

1) chronic means ongoing, which means it's not fatal. Chronic conditions can definitely cause a great deal of suffering, but they won't kill you. Hopefully, you'll have ways - treatment, etc. - to manage.

2) neither chronic conditions nor cancer are contagious.

COVID-19 can be fatal, and is contagious - it's what's known as a "slippery virus" - it mutates -

Here's an explanation - not written by me - of how it's different from a cold or the flu - 

"It has to do with RNA sequencing.... I.e. genetics.
Seasonal flu is an “all human virus”. The DNA/RNA chains that make up the virus are recognized by the human immune system. This means that your body has some immunity to it before it comes around each year... you get immunity two ways...through exposure to a virus, or by getting a flu shot.

Novel viruses, come from animals.... the WHO tracks novel viruses in animals, (sometimes for years watching for mutations). Usually these viruses only transfer from animal to animal (pigs in the case of H1N1) (birds in the case of the Spanish flu). But once, one of these animal viruses mutates, and starts to transfer from animals to humans... then it’s a problem, Why? Because we have no natural or acquired immunity.. the RNA sequencing of the genes inside the virus isn’t human, and the human immune system doesn’t recognize it so, we can’t fight it off.

Now.... sometimes, the mutation only allows transfer from animal to human, for years it’s only transmission is from an infected animal to a human before it finally mutates so that it can now transfer human to human... once that happens..we have a new contagion phase. And depending on the fashion of this new mutation, thats what decides how contagious, or how deadly it’s gonna be..

H1N1 was deadly....but it did not mutate in a way that was as deadly as the Spanish flu. It’s RNA was slower to mutate and it attacked its host differently, too.

Fast forward.
Now, here comes this Coronavirus... it existed in animals only, for nobody knows how long...but one day, at an animal market, in Wuhan China, in December 2019, it mutated and made the jump from animal to people. At first, only animals could give it to a person... But here is the scary part.... in just TWO WEEKS it mutated again and gained the ability to jump from human to human. Scientists call this quick ability, “slippery”

This Coronavirus, not being in any form a “human” virus (whereas we would all have some natural or acquired immunity). Took off like a rocket. And this was because, Humans have no known immunity...doctors have no known medicines for it.

And it just so happens that this particular mutated animal virus, changed itself in such a way the way that it causes great damage to human lungs..

That’s why Coronavirus is different from seasonal flu, or H1N1 or any other type of influenza.... this one is slippery AF. And it’s a lung eater...And, it’s already mutated AGAIN, so that we now have two strains to deal with, strain s, and strain L....which makes it twice as hard to develop a vaccine.

We really have no tools in our shed, with this. History has shown that fast and immediate closings of public places has helped in the past pandemics. Philadelphia and Baltimore were reluctant to close events in 1918 and they were the hardest hit in the US during the Spanish Flu."



My final thoughts - 
The death toll in Italy, as of this writing, is 4,825 in just a matter of days - not weeks, days. So yes, take it seriously. VERY seriously. My heart goes out to all those it has sickened, the families who have lost loved ones. We must do our absolute best to try to STOP this horrific virus.

This article from the NYTimes is well worth your time - 
https://www.nytimes.com/2020/03/21/world/europe/italy-coronavirus-center-lessons.html?referringSource=articleShare   

Excellent piece by, and vetted by, epidemiologists - the importance of social distancing - 
https://elemental.medium.com/hold-the-line-17231c48ff17

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March 14, 2020 - The Atlas of Happiness, and COVID-19



My husband Ron, who will be 65 in July, and I (59 in May) have never experienced anything like this COVID-19, and how it's impacting the world. First of all, please make sure you get your info from reliable sources! And wash your hands!


Ironically - or not - I just finished listening to The Atlas of Happiness: global secrets on how to be happy, by journalist Helen Russell. The narrator, Peter Holdway, was wonderful. She writes, from A to Z, about the culture, some history, and happiness of 33 different countries. All in bite size essays.



I think it's very good timing because everything shutting down is, to borrow my daughter Leena's term - soul crushing.

Anyway, here's my take-away during these challenging times:

1) Use your phone, and talk to friends and family - no not texting, conversations! There's nothing that replaces the sound of another human voice, and even laughing together. Humans are social animals, and we have to still find ways to connect.

2) Get outside - take a walk if you can, and really take in the trees, grass, sky and sun. If you can't take a walk, at least take a chair out and enjoy being out of your house. Spring is coming, and things will grow even during these COVID-19 times.

3) Do something you enjoy - preferably with your hands. Crafting (this is apparently big in the good old USA), drawing, paying attention to your pets. Pay attention to ANYTHING that's positive. Watch a good movie, find a good book.


And I'm reminding myself, that eventually, this too shall pass. In the meantime, I'll hug my husband, and snuggle my pets.  I don't know what's coming next, but I'm determined to still find pieces of life to enjoy.

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March 4, 2020 - This is what I know




I've had stretches - particularly in the beginning - when I was very much struggling... now I try for management, knowing I will have some bad days, but hoping for mostly good, or at least decent days.

I know the sun will rise - and here's a lovely shot of a sunrise.

My blog is called Visible Person, Invisible Problem, but I actually have four disorders - I like the word "disorders" because it implies a lack of order, a lack of synchronicity - vertiginous migraine or migraine associated vertigo if you prefer, a vision disorder, irritable bowel syndrome and PTSD... they're all tied together.

PTSD which results in anxiety is real, but the other three diagnoses are not all because of anxiety.

I'm trying to choose to focus on the positive - definitely not always easy - but I'm trying. Problem solving when I can, and recognizing and trying to accept what I can't control.

Molly loves to be brushed with this - rubbery bristles on the other side -

Trying to be in the moment - because I know that's really all I can know for sure, or truly possess.

Flowers! 


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