September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

Archive for November 2019

November 27, 2019 Feeling, letting go, moving on





I started working with my psychiatrist, Dr. Mirsky, two years ago. It took a couple months of being on meds for me to realize I'd fallen into a deep depression. Recognizing my depression was the first step to coming out of it.

I also realized I had developed PTSD anxiety from the night I had gotten sick. Urged by Dr. Mirsky, I began cognitive behavioral therapy with Christina.


This past weekend, for a variety of reasons, was a hard one for me. When I try something, and it does not work, at first my anxiety flares. When I pull back to regroup, it's very easy to fall into depression.

Letting myself feel sad, letting myself cry, is healthy. It's only when the crying is too frequent that it's a problem.
Grieving for my losses is important, but I don't want to get lost in the grief - when lonely images start to populate my thinking, depression's setting in.

Managing all of my invisible disorders – vestibular, visual, PTSD anxiety/depression, and irritable bowel – is no easy task. Sometimes I really hate it. Setbacks are hard to recover from, and chip away at my self-confidence.


When I draw, I try to get caught up in the activity, not over think it. Take a color, put it to paper, see what happens.




I discovered that the list of activities of daily living - ADL - that I did with Christina could be added to, which surprised me. I'm lucky to be able to do a lot of basic things on my own. I also wrote up my own list of what I enjoy -


I don't want to dismiss my difficult feelings - I need to let myself register ALL of that. But it's OK to let go of them - I don't need to hold on to them. I need to also let myself keep going.



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November 16, 2019 Look what I can do! And gratitude



During my session last week with Christina, she wrote up a list of all of the routine/activities of daily living – ADL – that I'm able to do. At the end she noted that more than half of them I am able to do without any help from Ron.

Then we moved on to a list of things that I enjoy that I'm able to do. Whether or not any of these can be expanded on I don't know. I think that doing this gave her a better idea of my daily life. It also gave me concrete evidence of how far I have come.

The buttons - plus a few bigger items - are a visual for me, of all the stuff I've done in recent weeks. Some routine, some not so much.

Since doing this exercise with Christina, I realized how much I have maintained even while trying to stabilize from my setback the beginning of October. Maintaining my ADL is a big deal.

I also remembered that when my mother emailed me that it was impressive that I had gone to a furniture store with Ron and Leena to pick out new dining chairs, I had downplayed it. But it was a big deal – difficult yes, but I did it!

I managed the Saturday a couple of weeks ago when our old living room windows were taken out, and new ones installed. Thinking through to make sure that the pets were safe, and dealing with the disruption.

I realized when talking about pacing with Ann (VT) that I underestimate what I am actually doing. Given the fact that I am living a new normal, I really need to give myself credit for all of the challenges I DO take on.

It's so, so easy to focus on the deficits, so I am going to make a point every week to focus on what I'm accomplishing.

here's some of the buttons I sorted, a visual accomplishment -

I'm incredibly grateful that my medical team - Dr. Margolis, Ann, Christina and Joyce – for never giving up on me even when I'm struggling.

Finally, I am fully aware, and very, very grateful and appreciative of the support I get from family to be able to still be traveling this medical journey of mine.



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November 9, 2019 - "me" still there, even in my new normal



Looking back at the last 30 years, I've gotten involved, taken action:

1) I helped co-found a flute choir (Lakeside Flutes - still in existence) in 1988,

2) volunteered when my daughters were in grade school,

3) got involved in our congregation's Sunday School - serving on the Youth Education Committee for over 10 years,

4) got involved with the community band I played in after Lakeside Flutes, 

5) Got my diagnoses, and treatment - after I got sick - another form of taking action, and

6) Got involved with the Vestibular Disorders Assn. - VeDA - as an Ambassador.

In the present - right now - I know these three things -

1) my therapies are not bad for me - quite the contrary, they help me, as long as they're tailored to me. Patience also matters - speed is never a thing with neurological rehab.

2) I can't completely control (I wish!) all the factors that can impact me, bring on symptoms. I can only do the best I can.

3) Doing is important. Trying things. I still like the idea of volunteering "out there."


I need to try out volunteering in environments where I'm comfortable, where getting there is not difficult, and where I know the people will be understanding, and willing to accommodate.

To that end, I am re-approaching our local West Deerfield Township food pantry about volunteering there.

I've also floated the idea of some kind of volunteering at Dr. Margolis's office. Yes, my doctor's office.

I don't know if either of these volunteering opportunities is going to work, but I need to try.  I also don't know how my therapies and volunteering will fit together; it's going to take some experimentation. And I have to do the best I can to take care of myself.

Life can be so unpredictable. Trying things that I actually choose feels like taking back a little bit of control over my life. I believe that "me" - the one who DID all those things I listed - is still there.

My skills are still there, but my current health situation definitely complicates matters. I hope that there's a way, even in my new normal, not for what I'd once envisioned, but for something "out there."



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November 3, 2019 - My new normal



I'm special... no really, I am... I'm part of the roughly 1% of the population that has migraine associated vertigo... when I add in my vision disorder, PTSD Anxiety/Depression, and Irritable Bowel Syndrome (IBS) - well, there's just not a whole lot of people out there with my mix of diagnoses.

I know, looking back, how I've spent the last 8 yrs. 8 yrs from now, I don't want to look back and say "well, congrats Tamar, you spent the last 8 yrs feeling sorry for yourself, and angry"... nope, life's too short for that - I don't want to get stuck in sadness, frustration, etc.... I have to do the best I can, make the most of what I've got.

I'm not really thinking 8 years down the road right now. I'll start with one day at a time... but I'll keep in the back of my mind that retrospective thought.

I'll listen to as much audio material as I'm able, which gets me outside my own head, and allows me to learn.

Make music - flute, piano keyboard... listen to whatever comes out of me.

Listen to music - there's SO much wonderful music out there, and I'm grateful I can still listen, in small doses.

Draw - when the mood strikes.

stay connected - however I'm able, with friends and family.

Write, when I have something to say - the stats I gave above may not be accurate, maybe there are more people out there suffering than official stats indicate.

How many out there are looking for answers as I once was? If I can help even one or two people with some of my writing, that's worthwhile.

Enjoy nature - I love the colors of nature - that's why spring is my favorite season when everything bursts to life. The picture I started this piece with, was taken by my daughter Leena some time ago. Lovely, isn't it?

I'll take pleasure in walks with Cosmo, and Ron, and go when possible to the Chicago botanic Garden - I'm lucky to have that gem just a 20 minute drive away.

Here's a picture from a visit this past summer -

Share info and music on my public Facebook page  - trying to spread awareness about invisible disorders – whether vestibular, visual, or mental health.

I want to try to fill my new normal with whatever purpose, meaning, contentment, joy - in bits and pieces - is possible for me.
One more CBG picture 



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