I'm sharing this piece because I
thought that it might be helpful for others - not just myself - to see my thought
process. That said, neurological rehab
is very individual -something I remind myself of frequently.
Part of what makes my life full
right now is my therapies, but I've also said that therapy is a means to an end,
not an end in itself... therapy shouldn't become something I do because I'm
used to it.
As 2019 begins, I'm thinking that
being present, & thinking about the future are not mutually exclusive... I
can't look into a crystal ball & know for sure how my life will unfold, but
that doesn't mean make NO plans at all.
Volunteering - yup, still thinking
about that - I used to think that volunteering had to be "out there,"
but maybe not, right now. My main goal
really is to do something that feels valuable. I don't want to do anything
that's on a tight schedule - definitely not ready for that.
I'll remind Cassey at VeDA about sending
me new member calls. www.vestibular.org
Maybe I could do something for a
local organization - like our local Shelter (Orphans of the Storm - very close
to our house. Fleece blankets for cats & dogs?
Therapy - it feels like talking with
Ann & Joyce about parameters of my treatment makes sense.
Joyce, my OT/Feldenkrais
practitioner was the first person who provided the beginning of my road to
recovery, & working with her is not only for balance, but also sensory work
- she's also trained in the Masgutova method (https://masgutovamethod.com/).
Vestibular & sensory issues are complex,
but it's relevant & valuable for me to think about what & when I
transition to in my work with her. I don't
know what kind of support I will need long-term - given my vertiginous migraine
disorder - I'll only find out by experimenting.
Ann - vision therapy - vision is a multilayered, complex system
involving so much... but again, what are the parameters of my treatment at this
point, and what kind of support will I need long-term?
Working with Christina - cognitive
behavioral therapy - will at some point moving to support, but I don't think
it's time for a discussion about that yet - I'm still in my first year of
treatment.
I'm fully aware that I'm extremely
fortunate to be able to think about having long-term support. I truly wish everyone was in this position,
especially because it can take a long time to pull all the pieces of a
successful treatment plan together.
thanks to my friend Marla for the above quote
