September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

December 27th, 2018 home functioning + some special outings = "amazing!"




I've been feeling kind of down, & then I thought "you know what, being able to do SOME outings - a few of which are special/particularly challenging - over the course of a year is a BIG deal for you!"

I also remembered Christina saying that I sort of "skated" over saying that I'm more functional at home, & "that that's actually amazing"... & I thought "she's right, being functional at home matters a LOT!"

so I did this drawing, & I'm sharing it... because with my invisible disorders - visual and vestibular - doing stuff at home matters... & I'm trying to think of things I can do with my daughters at home, while they're home on break from college.

I have no idea what my future holds - none of us does... I'll do the best I can now... I didn't ask for either of my disorders - who would?! - but I've got to do the best I can with abilities/functioning I DO have.


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