I took a look at what
I've posted over the last week or so, and thought about discussions within the
petition threads, some of which I've listened to (listening to everything is
too much - 300 comments!). I also find
myself thinking about what it takes to motivate people to take action, to feel
that their voices are heard.
Figuring out how to
reach people, to motivate others is not easy.
Sometimes self motivation can be pretty tough. I like to take some kind of action, to feel
like there's something I can DO about a problem. I know that some people just get discouraged,
which I do as well at times. For me, the
answer to discouragement and apathy is twofold.
I think about all the stories people have shared with me over
the last two years that I've been an Ambassador for VEDA. Becoming an Ambassador meant that my blog
pieces were posted on the VEDA Facebook page, so I was able to reach a wider
audience. Everyone's story is different, but there are so many who need help; a
diagnosis, and treatment, or at least info so they know how to manage, and have
a life. Being one more voice trying to
help is a positive.
I've also been able to connect with some like minded people -
particularly those with whom I'm trying to spread the word about the WHO
petition - and these people are DETERMINED.
Determined not to let depression, life changes, loss, etc. keep them
down. Determined to get the message out
that we need change in the medical community.
Being a part of all of
this helps me, which is obviously good.
Taking action feels much better than just knowing that problems exist.
On that note, I ask
again - if you haven't signed the
petition, please do it! We're up to
1180 signatures :-) AND please share it
- on social media, via e-mail, whatever.
If you've already shared it, consider sharing it again - perhaps someone
who didn't see it the first time will see it this time.
"Goal
We aim to give vestibular / neurovestibular patients a better chance for swift and accurate diagnosis, a cure or appropriate treatment. We ask for a worldwide agreement on education of medical students, further training for existing specialists and the establishment of medical guidelines regarding vestibular conditions / disorders."
We aim to give vestibular / neurovestibular patients a better chance for swift and accurate diagnosis, a cure or appropriate treatment. We ask for a worldwide agreement on education of medical students, further training for existing specialists and the establishment of medical guidelines regarding vestibular conditions / disorders."
And
I ask you again to support the
Vestibular Disorders Association. If
you can support VEDA, by chipping in, that's great. Follow them on Facebook and share their posts
to help inform people. Become a part of
a community that supports those of us living with these invisible disorders...
Thank You!
