September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

September 16th 2015 What 3 things do people need to know?

NOTE: Please copy and paste into Google Translate to listen if needed.

It has been officially recognized that this is Balance Awareness Week - so here are three important points.

Don't judge based on your own experience -

I recently heard a story in the news about someone diminishing someone else's experience with vertigo because their OWN experience was fairly mild.  So one of the three things I'd want someone to know is that there is a wide range of severity for vertigo and dizziness, and disequilibrium - if yours wasn't disabling, someone else's still can be.... don't base others' experiences solely on your own.

Don't presume that you know what it's like -

Unless you are SURE you "get" what someone is going through - and this applies to so many invisible disorders - don't presume that you do.  Though it's difficult not to be understood, it's more difficult when people think they get it, but they really don't.  Telling someone that you're sorry it's hard for them is always a good response, rather than that you understand, and then just listen to them. 

Many disorders really are invisible -

Finally, just because someone looks OK, doesn't mean that nothing is wrong.  Even when someone is having a bad day, many are good at putting on a good face - how many times have people said that Robin Williams always had a smile on his face?  My eyes do not look strange - neither my Convergence Insufficiency, nor my impaired VOR are visible to someone with whom I'm speaking. 

vestibular disorders - www.vestibular.org
functional vision disorders - www.covd.org



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