September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

Archive for April 2018

April 15th, 2018 Pulling all the pieces together...


I discussed my neural plasticity Q -

"Neural plasticity (the concept on which Feldenkrais, vision, and cognitive behavioral therapies, as well as conventional VRT - vestibular rehab therapy,
are all built) is clearly real, but there are many people -with all different visible OR invisible disorders - who do not improve to the level they might wish, are still disabled, have limitations... why is that? any thoughts, anyone?"

with Ron last night - here's what we thought about:

1) excellent medical professionals - fortunately I ultimately ended up with this, but it took time... when I was finally ready, and recognized I needed to see a psychiatrist, Dr. Mirsky was the one who recommended I work with a cognitive behavioral therapy specialist... Ron helped me an excellent one - Christina... also see #2...

2) speedy diagnosis - I did not have this... and this is still, based on conversations I've had with others, a problem particularly with vestibular and vision problems with adults... my Feldenkrais practitioner/OT Joyce was the one who directed me to Dr. Margolis, developmental optometrist and a friend had directed me to Joyce...

3) time - so it's taken me a long time to put ALL the pieces together, after a bad year (2017), and feel like I'm making progress again... this is not how health insurance companies view rehab......  Coverage can be a problem... I'm very thankful I have financial support where insurance coverage is lacking...

4) for some people - a friend reminded me of this - there is brain damage which simply does not repair... Very thankful I don't have this problem...

See Norman Doidge's books for more understanding of neural plasticity...  here's a link to the Wikipedia page: https://en.wikipedia.org/wiki/Neuroplasticity



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April 3rd, 2018 Shadows, reflections, edges = depth perception...


Something is changing for me... I've had a month off from vision therapy (VT) but have had several conversations with Ann, and done some things at home, and this time off gave my body time to absorb... and who knows what else is going on, working inside my neurological self - I'm getting glimpses of vision I don't think I ever had before... wow! 

It's one thing to know intellectually/cognitively an object is round, has depth, it's quite another to really SEE it in a palpable way... this new vision isn't ALWAYS there, but I have a hunch it'll continue to grow...
Exhilarating and exhausting... makes me feel a bit off kilter at times, but I know it's a good thing...  There's weight and volume, density and space in between things that is a THING itself... really kind of amazing... how did I not SEE this before?!

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