September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

March 29th, 2019 possibility....



Change is unpredictable – sometimes happening in the blink of an eye, sometimes over decades... but it's not always bad, sometimes it's possibility.

As my systemic multitasking improves, my ability to function improves... & these possibilities come into my head –

will I ever do local driving again?
Will attending musical theater be a thing for me?
Will I ever be able to do a little bit of travel?  starting with a day trip? travel doesn't have to be something humongous

Will I be able to watch a movie at home with only one break?  Without a break?
Can life actually become more fun for me again?

I think the answer to the last question is probably yes & that's pretty cool.  I don't know the answer to the other questions, because I don't know how much more I'll improve - where all this rehab is taking me.

I DO know that opening up to possibility, to the not knowing of life, to even contemplating those questions above is major for me.

I also know that to create positive change, finding even a very small glimmer of strength, of ability - and building on it – matters.



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March 27th, 2019 Creativity... ability...



I posted a piece on 2-20-19 about self care, & what I've realized is that self care isn't just about things like pacing myself and getting good sleep. 

It's also about doing things for enjoyment – even if it's only for a few minutes, whether it's a creative thing, listening to something, a phone call, etc. The drawing above is about a few minutes of enjoyment.

Christina told me once I could do hard things, & I'm now starting to believe that.  Not all the time, but I'm starting to feel once again that I'm able. Having the various resources I need in order to make progress is important, but ultimately it's still up to me to actually DO. 
  


I don't know what life's going to throw my way - life can be very unpredictable - I'm telling myself more & more lately - "you are doing the best you can". I'm clearly making progress - what I've been doing lately is proof of that. 

These last two pieces are just drawings – I seem to have found a style of my own, though each piece is a little bit different there are definitely similarities… Interesting to see what has emerged.



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March 9th, 2019 6 things to remember




looking back at what I've written recently, there are some things that stand out -

1) in order to feel hopeful, you have to have a plan, & having a plan means having not only the perseverance to carry it out, but also the right team of professionals, & the financial resources.  I feel for those were not in this position.

2) I need to be honest with myself, but being realistic doesn't mean that a negative outcome is a given.  Especially if I learn along the way - learning means growth.

3) Gather info, think things thru, & be open to opportunity.  Let myself sit with information when I need to, but try not to get in my own way.
  
4) I am not a static thing - I'm a human being, which means what I can do today may change in the future - one day to the next, one week to the next, etc.- try to do the best you/I can.

5) keep communication open, not just between myself and my professional, but between the professionals themselves. I feel very fortunate to be working with my medical professionals.  It's important that I'm able to ask questions - for those reading this, if someone you're working with isn't open to questions, if at all possible, go elsewhere.

6) don't focus so much on where I'm going, on making progress, to the point that I can't enjoy where I am right now.  

The picture that goes with this post is of Molly - a pet of ours who puts a smile on my face every day.
Photo credit - Leena




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