September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

May 30th, 2020 - I'm lucky, & look for the good





I consider myself lucky. When COVID-19 surfaced, I was not in search of diagnoses - I've got them. Nor was I in search of treatment - in fact I'd been doing all my treatments for years.

I am now in "patient heal thyself" mode re my Feldenkrais therapy.  I may need a zoom session at some point, and maybe at some point I will feel safe enough to do a session in person. But not now.


I also discovered that now that I'm no longer doing Feldenkrais or vision therapy, though I still think about my health situation, I think about it less. I try to keep busy. I want to get what I can out of life, rather than focusing on therapy.

I'm comfortable making my own, thought through, rational decisions about how much I do now, versus in months to come. Short term cost for long term gain is OK with me. At the age of 59, I'm not done with this thing called life. For myself, for my family, and whatever the future holds.


It's hard these days to feel optimistic, but past generations have endured so much, I have to believe we can see our way through this pandemic. So I try to focus on the present, one day at a time.


Find good moments to treasure.  String them together in my mind, and try to make them stick. Memory is a complicated, ephemeral thing, but I'll still look for the good where I can.

The selfie was taken on my birthday. The flowers are all from our walks with our dog.

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April 18, 2020 - doing my best to cope - my how to





My coping strategy these days -
1) breathe - feel the air fill my lungs

2) try to stay busy... keep moving, keep going

3) make music... if you can't make music, do something else creative

4) listen to music - uplifting - nothing that brings me down

5) notice every little thing that's good - flowers blooming, snuggling a pet (they're adorable and thankfully totally unaware of the pandemic)



6) stay connected - reach out to people

7) take in the news, and then move on - leave the weighty decisions to those either with the knowledge and expertise, or talking to those with knowledge and expertise to do the best they can to figure things out.

8) be patient - this pandemic is NOT going to go away overnight

9) try my best to be flexible, to problem solve when necessary with my immediate family, be creative

10) take walks with my family and our dog - getting outside, even if the weather's not wonderful feels good.


11) one day at a time - thinking too much ahead of that, for me, is just crazy making.

12) take a minute to let go of tension - consciously let my muscles let go, relax just for a little while.



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March 22, 2020 - much bigger than me - COVID-19



I appreciate people with various health problems feeling this is an opportunity to educate the public, or are perhaps even feeling frustrated and angry that COVID-19 is being taken SO seriously. 

So I wanted to share why I think COVID-19 is different from chronic conditions, and cancer, and why scientifically it's SO different - and more dangerous - than a cold or the flu - 

1) chronic means ongoing, which means it's not fatal. Chronic conditions can definitely cause a great deal of suffering, but they won't kill you. Hopefully, you'll have ways - treatment, etc. - to manage.

2) neither chronic conditions nor cancer are contagious.

COVID-19 can be fatal, and is contagious - it's what's known as a "slippery virus" - it mutates -

Here's an explanation - not written by me - of how it's different from a cold or the flu - 

"It has to do with RNA sequencing.... I.e. genetics.
Seasonal flu is an “all human virus”. The DNA/RNA chains that make up the virus are recognized by the human immune system. This means that your body has some immunity to it before it comes around each year... you get immunity two ways...through exposure to a virus, or by getting a flu shot.

Novel viruses, come from animals.... the WHO tracks novel viruses in animals, (sometimes for years watching for mutations). Usually these viruses only transfer from animal to animal (pigs in the case of H1N1) (birds in the case of the Spanish flu). But once, one of these animal viruses mutates, and starts to transfer from animals to humans... then it’s a problem, Why? Because we have no natural or acquired immunity.. the RNA sequencing of the genes inside the virus isn’t human, and the human immune system doesn’t recognize it so, we can’t fight it off.

Now.... sometimes, the mutation only allows transfer from animal to human, for years it’s only transmission is from an infected animal to a human before it finally mutates so that it can now transfer human to human... once that happens..we have a new contagion phase. And depending on the fashion of this new mutation, thats what decides how contagious, or how deadly it’s gonna be..

H1N1 was deadly....but it did not mutate in a way that was as deadly as the Spanish flu. It’s RNA was slower to mutate and it attacked its host differently, too.

Fast forward.
Now, here comes this Coronavirus... it existed in animals only, for nobody knows how long...but one day, at an animal market, in Wuhan China, in December 2019, it mutated and made the jump from animal to people. At first, only animals could give it to a person... But here is the scary part.... in just TWO WEEKS it mutated again and gained the ability to jump from human to human. Scientists call this quick ability, “slippery”

This Coronavirus, not being in any form a “human” virus (whereas we would all have some natural or acquired immunity). Took off like a rocket. And this was because, Humans have no known immunity...doctors have no known medicines for it.

And it just so happens that this particular mutated animal virus, changed itself in such a way the way that it causes great damage to human lungs..

That’s why Coronavirus is different from seasonal flu, or H1N1 or any other type of influenza.... this one is slippery AF. And it’s a lung eater...And, it’s already mutated AGAIN, so that we now have two strains to deal with, strain s, and strain L....which makes it twice as hard to develop a vaccine.

We really have no tools in our shed, with this. History has shown that fast and immediate closings of public places has helped in the past pandemics. Philadelphia and Baltimore were reluctant to close events in 1918 and they were the hardest hit in the US during the Spanish Flu."



My final thoughts - 
The death toll in Italy, as of this writing, is 4,825 in just a matter of days - not weeks, days. So yes, take it seriously. VERY seriously. My heart goes out to all those it has sickened, the families who have lost loved ones. We must do our absolute best to try to STOP this horrific virus.

This article from the NYTimes is well worth your time - 
https://www.nytimes.com/2020/03/21/world/europe/italy-coronavirus-center-lessons.html?referringSource=articleShare   

Excellent piece by, and vetted by, epidemiologists - the importance of social distancing - 
https://elemental.medium.com/hold-the-line-17231c48ff17

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