September 9, 2021 - One decade... be present.

It’s been a decade since I got sick. I didn’t know then, that night, that my life was dramatically changed. I’ve done therapies, and they’ve...

April 23rd 2017 Part 2 - My goal: playing sheet music...

So here I go with my goal: I want to play sheet music again.  For me, this is a simple, but complicated statement.  There's SO much wonderful music out there, and I really want to be able to PLAY it, bring some of it to life.  Sheet music is, however, a big challenge. 

All kinds of multi-tasking:
Comprehension which requires processing the musical notes as well as the rhythms, tracking, figure ground (notes on the staff).  There are also multiple physical elements; moving my fingers, controlling my breathing, holding my arms in the correct position, sitting or standing properly, over all body posture/position, and using my tongue and lips. 

Mentioning my tongue and lips may sound strange, but musicians who play wind instruments may use their tongues quite a bit.  Tonguing is how I produce staccato notes, or simply separate one note from another.    Flute playing involves an unnatural position, or posture.  In a way, I'm used to the less natural position playing my flute requires.  However, I want to avoid physical problems now, so I'm trying to make changes, to make it work, after 40 years!

All these elements involved in playing sheet music make it feel like a big challenge.  A year and a half ago, I tried going too fast, and got frustrated and discouraged.  But not trying at all gets me nowhere.  I need to revisit it, because eventually I want to conquer this goal, master it!  So, I need to break down, and piece together all those elements I've mentioned.  That's what Ann and Joyce often do; break movement, visual tasks, etc. down to manageable levels, and then build from there.  I can discuss with them what I figure out is or isn't working, and they can help me understand. 

I took out the John Denver songbook I purchased last year, and using my finger, tracked through the seemingly simple song For Baby, For Bobby.  It's always fascinating to me to see what a piece of music I've heard, looks like on paper.  I tend to use another system - whether my finger, or audio (my own voice) - to help with tracking, guidance.  Clearly, this needs to change in order for me to play my flute while reading sheet music. 

Right now it feels like there's a missing connection, a missing link between reading the sheet music, and playing my flute.  I can play my flute, whether freestyle, or on good days a short melody from memory.  I can now read through some simple sheet music.  And yes, I had to take a break, and get reorganized, but I did it. So I've made progress.  But putting the two together - playing AND sheet music - just doesn't work, yet.  I get brain jam, or off balance, or both.  Too much to process.

I think about other creative hand/eye activities I do now, and compare to my flute, to try to figure things out.  Puzzle out what I need to work on.

Writing requires my computer.  This means using the keyboard, switching my gaze from the keyboard to the screen (though I do touch type), looking at the screen which always has SOME movement (almost undetectable, but there), and of course thinking. 

Playing our piano keyboard is different from writing OR flute playing.  The position is more like writing.  Looking at the keyboard is a visual exercise of sorts - the stripes of the keyboard, and hand-eye coordination.  The keyboard is not nearly as well known to me as the keys of a flute, but doesn't feel like a total stranger.  Find Middle C and go from there.  Don't worry about sheet music; I never knew how to read Bass Clef, and I'm not interested in that now. I just want to make some music, and I'm finding I enjoy it.

I've done a couple drawings, using colored pencils on cheap drawing paper.  It fascinates me to see the different designs and colors I created. It's a good visual exercise, as different colors and shapes emerge on paper, AND a bit of an emotional outlet for a few minutes.  I've got to tackle sharpening the pencils (not every day), which is also visual; holding the pencil sharpener, putting the pencil in and turning it.

Getting back to my flute.  I think the key word when it comes to sheet music is "eventually."  Because of the complexity of the task, playing sheet music - as opposed to only reading through it, or playing my flute without using sheet music - is not something that I'll achieve in days or weeks.  Understanding all the pieces is important; I can't work towards this goal without that knowledge.  There's a positive side to having such a complex, big challenge. I believe that all the work involved in being able to PLAY sheet music will mean more than just that.  I will have made a great deal of progress, tied a lot of pieces together, when I've accomplished this goal.  For now, I need patience and persistence... patience and persistence.


Leave a comment

March 17th 2016 Find energy, feel joy...

I looked recently at my Dec. 16th, 2015 post about my flute rehab plan; I've been thinking about my music, and reviewing my situation.  I still believe that, eventually, I will be able once again to teach private flute lessons.  I FINALLY did a mini practice lesson with my daughter Cara.  Overall the mini lesson went well, and was a good learning experience for me.  The problem is that making progress with this goal is very gradual.  I also find myself thinking when I'm doing my VT and FT, "how can I make this feel less like work?". 


The answer lies in feeling energy and enjoyment, which got me thinking about cognitive re-directs and cognitive over-rides.  Cognitive over-rides are, I think, a bit more natural and less overtly conscious.  It means that you find yourself focusing on something else while you're doing something, but without necessarily saying "I'm going to think about something else."     It's more likely to happen if you let yourself relax, rather than getting hyper-focused on your task.  Cognitive over-rides help make a difficult task easier, because you are no longer THINKING so much about the difficulty of whatever you are trying to do.  For example, if you are taking a walk, and start noticing your surroundings - sunshine, pretty flowers, birds, etc. - the task of walking becomes easier.


A re-direct is more purposeful.  You intentionally direct your brain to something else, and it can get your thinking, your processing onto a higher level.  A re-direct during a VT exercise will, I think, take the pressure off a bit, make it feel less like work.  I've found when I talk about something with Ann while I do an exercise, it almost always allows me to do better.  I think the same can be true on my own  - I can hum a tune or let myself think about things while I work. 


I messaged my friend Glenn recently about the fact that if you're really into whatever you're doing, you also often have better mental energy.  Being excited about something makes you feel energetic.  Boredom is very bad for cognitive processing - your brain kind of shuts down, or gets sluggish.   I told him I had decided to get brand new music to play, music that I really enjoy, and WANT to play.  If I have new music I'm excited about, I think it  will help my rehab/brain re-training. 


I always used to say that my students needed to enjoy learning to play flute, because if music isn't enjoyable, what's the point?  I know music can also be moving and cathartic, but there really needs to be an element of joy.  I thought about the idea of sluggishness and boredom when I took out a piece of sheet music I've played before, and played one line.  New music would feel fresh, without the baggage of remembering when I'd played it in the past, which is bittersweet for me.


Ann and Joyce were both very enthusiastic about my new music idea. They both always say my face lights up when I talk about music. I'm going to buy a John Denver songbook.  Surprisingly, I never bought a songbook of his music before, so actually playing his music would be new for me.  If I can't find flute solo arrangements that work for me, given the level I'm looking for right now, I'll buy one to play the vocal line.  I know many of his songs, so comprehension won't be so complicated, and I'll be playing music I love.


There's also the matter of timing.  I wrote recently about how important routines are to me.  I still believe what I said, but when it comes to brain re-training, the last thing I want is for my brain to get sluggish out of boredom.  The very word "routine" sometimes conjures up images of boredom - that "here we go again" feeling.  I think there needs to be a balance between routines for some things, and doing something a bit unexpected so our brains pay attention. 


Finally, there's this thing called fun.  Long term goals with a plan are important, but I also need short term fun woven into my day.  Things that make me feel good.  Part of that can come from listening to music.  Feeling good can also come, for me, from letting bits of flute playing be a more natural part of my day.  I - like many musicians - always felt an element of work in my playing because I thought of it as practicing.  Now I want to let that go, and just let music be a way to express myself.  So I'll go back to playing my flute more than once a day, even if it's very short.  When I think of it, I'll play my flute.  Probably more in the morning, but I'll see what feels  good; I'm hoping to feel energized, so I might surprise myself.


Letting my mind wander when I'm doing my VT and FT, as long as I'm not wandering into worry, will help me on my journey.  Music I love will help me.  Music is my thing, but some people are into crafts, gardening, or whatever. I've said before, but it's worth repeating - find something that is joyful for you, and make it a part of your daily life - especially for the difficult days.


Leave a comment

March 22nd 2017 How I used to be, where I am now...

Looking back over the last five and a half years, I feel like my illness has gone in stages.  The first couple years were acute.  The first year in particular is mostly a blur with memories of doctor appointments, feeling bad, and high anxiety about "what the hell is WRONG with me?!". 

In May of 2012 I started Feldenkrais Therapy with my wonderful OT, Joyce (recommended by a friend) and life started to improve.  Then I got my MAV diagnosis in July of 2012, and in September began my migraine diet which I follow very closely.  Finally, in May of 2013 I got my CI diagnosis, and began Vision Therapy with my equally wonderful Vision Therapist Ann, supervised by Dr. Neil Margolis. 

Beyond the acute phase, there's no names or labels other than "chronic."  My second year of illness was still bad, and memories are blurry, but I started to feel hopeful.  My work with Joyce resulted in my working on walking, so that I could take daily walks.  Getting out of the house was incredible. 

During roughly the third and fourth years I worked for what I consider really  basic improvement.  I began to sleep less - wow, I actually was OUT of bed more than IN bed - to the point that I realized that if I was disciplined about my nap time, I slept somewhat better at night.

I've realized that I'm now in a lengthier phase that is blurry in its' own way.  I'm doing the slow, challenging work of trying to push forward to wherever I'm going to end up.  The blurriness comes from my not knowing where I'll end up.  I told Ron (my husband) recently that I try not to think too much about the future; there are too many question marks for me. 

So besides what I've already mentioned - walking and sleeping - where am I NOW?

I asked Joyce what has changed for me.  I also asked Ron.  My VT schedule has been less consistent lately, but I'm gonna take a guess about what Ann would say.  Here's their input, as well as some things I came up with.  I'm not going to say anything about how any of what I came up with is still limited in any way, or what "typical" stuff is not on the list; the point is to focus on the positive.

What Joyce said -
I can tolerate more - she doesn't have to be as delicate.  Movements can vary more now.  She reminded me that in the very beginning, I couldn't lie down, or basically be in any position other than sitting.  She also thinks I recover faster. 

What Ann would say -
I can do harder tasks in VT than before, like using prism glasses a bit.  I also can do some things more smoothly, or faster.  I tolerate noise during some activities.

What Ron said -
In the beginning, I couldn't take walks with him.  I couldn't go to my parents house - about 45 miles away.  I also can now go to cousins in Marengo, which is an hour and a half drive.  Going to Marengo is usually only once a year, but I can do it now.  He thinks I can do more on the computer, and listen to more audio... this is hard for me to say, but he may be right. 

What I came up with -

1) Challenging myself - this is something I've thought a great deal about.  Challenges can be large or small. 
Any time I have to multi-task - particularly unexpectedly.  For example, when I'm playing my flute, and Ron - or anyone - calls, and I have to stop, answer the phone, and have a conversation - even a short one.  Then give myself a minute, and go back to my flute.  Since so many tasks (i.e. emptying the dishwasher) involve a kind of multi-tasking most don't think about, this kind of multi-tasking - going from one completely different task to another - is a big deal for me.

A really big one: I finally did dental x-rays - years overdue.  Celebrating Passover (or any holiday) is big.

2) Writing myself notes - I was just looking at a post about brain fog, and thought about how notes help me.  They actually serve more than one purpose.  Notes help me remember things (especially if it's NOT routine), but ALSO are proof to me of what I actually get done.  For me, just writing the physical note is an accomplishment, because it's a visual exercise.  I'm also planning what tasks I want/need to accomplish.

Examples of items (special, non-routine tasks) on my notes:

- Phone calls - scheduling the exterminator, a doctor appointment, whatever.  Phone calls are a challenge for me. If I have to make ANY calls, I write them down, and getting those done is definitely an accomplishment.  Dialing, processing whatever info I need to, making a note about the call if necessary - lots of work!

- Sunday Comics - tracking, eye gaze switching, comprehension, hand eye coordination (turning the page)

- Local paper - same as above

- Watering plants - filling the watering can at the kitchen sink, walking with it, and watering different plants - lots of multi-tasking, and effort.

- Making a shopping list - going back and forth between where food is, and my computer where I edit my list... this is a large task for me.

3) My flute playing - though freestyle - has changed.  I've been listening more.  Sometimes my melodies have more rhythm, or I pay more attention to how the notes work together.  That's a higher level of processing, and I'm happy I noticed it.

4) The fact that I wrote a list of activities for VT, and use as a guide.  I never would have done this once upon a time; it would have overwhelmed me.

I look at this, and think about Jill Bolte Taylor, the woman who suffered a massive stroke, and took eight years to recover.  My situation is very different, but I think I've still got time.



5 Comments
© 2014 - 2019 Tamar Schwartz, Visible Person Invisible Problem (VPIP). Powered by Blogger.

Search

Swedish Greys - a WordPress theme from Nordic Themepark. Converted by LiteThemes.com.